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Grant and Funding Programs Offered by Fondation Simon-Le-Zèbre

The Simon-Le-Zèbre Foundation is a non-profit organization dedicated to supporting children living with rare diseases and their families. By fostering research, raising awareness, and providing financial and emotional assistance, the foundation aims to improve the quality of life for these children and promote a more inclusive society. View Fondation Simon-Le-Zèbre's website for more information.

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About Fondation Simon-Le-Zèbre

What type of organization is Fondation Simon-Le-Zèbre?

Fondation Simon-Le-Zèbre is a Foundation.

What is Fondation Simon-Le-Zèbre's official website?

Fondation Simon-Le-Zèbre's official website is http://www.simonlezebre.ca.

What else should I know about Fondation Simon-Le-Zèbre?

Fondation Simon-Le-Zèbre La mission de la Fondation Simon-Le-Zèbre The Fondation Simon-Le-Zèbre works to raise awareness and demystify Sotos syndrome among the 7,000 rare diseases. The foundation supports organizations and associations dedicated to rare and orphan diseases, as well as any other causes dear to the founding members. About Simon Simon is affected by a rare disease: Sotos syndrome. This condition affects about 1 in every 14,000 births. Known as cerebral gigantism, Sotos syndrome was identified in 1964 by Dr. Juan Sotos, an American endocrinologist. How to help the Foundation There are many ways to help the Fondation Simon-Le-Zèbre continue its mission. You can make a donation via credit card through the secure transactional site of the Fondation Québec Philantrope. Latest news The Foundation in the media On September 15th, 2020, an article was published highlighting the one-year anniversary of Simon-Le-Zèbre: https://www.quebechebdo.com/culture/99431/simon-le-zebre-fete-ses-12-mois-d-existe-3897035/ Upcoming events COURIR POUR LES ZÈBRES 2020 Date: 11/22/2019 *Information will be available soon! Informational video A video about Simon Le Zèbre, created by Raphaëlle Denis (images), Jeff Denis (editing), and music by Les petites Tounes, was posted by JET7 Media in May 2015. Discover all our videos for more about our mission and stories.