R
Closed
Last Update: April 21, 2026
Funding available
$ 800,000
Timeline
- Open Date : November 30, 2023
- Closing date : February 22, 2024
Location
Canada
Overview
This program offers up to $800,000 over five years to patient-led rare disease organizations. It supports research networks, patient and research community convening, and shared research priorities.
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Opportunity Score
Moderate potential, but conditions must align.
At a glance
Funding available
Financing goals
- Develop strategic partnerships
- Develop a new program or service
- Increase social or community impact
Eligible Funding
- Maximum amount : 800,000 $
- Up to 15% of project cost
Timeline
- Open Date : November 30, 2023
- Closing date : February 22, 2024
Eligible candidates
Eligible Industries
- Health care and social assistance
Location
- Canada
Legal structures
- Non-profit
Annual revenue
- All revenue ranges
Organisation size
- All organization sizes
Audience
- All groups
Non-profit candidates
Sector of operation
- Research
- Civic and Advocacy Organizations
- Grant-making Foundations
Target groups
- Nonprofits / charities
- Community leaders
Revenue structures
- 100% donations / grants
Scope
- International
Next Steps
1
Determine your project
2
Validate your eligibility
Activities funded
- Build or strengthen a patient-led rare disease research network
- Convene the patient and research community
- Develop shared research priorities and proposals
- Strengthen organizational and scientific capacity within the disease area
Documents Needed
- Patient Organization Lead resume
- Organization financial statements
- Current organization operating budget
- Project funders list
- Draft project budget
Eligibility
Who is eligible?
- Patient-led rare disease advocacy organizations
- Disease foundations representing patients
- Non-U.S. nonprofit or charitable patient-led rare disease organizations
Who is not eligible
- Organizations previously funded through Rare As One Network Cycle 1 or Cycle 2
- Organizations previously funded through certain other CZI science programs
- Meta employees and CZI employees
- Chapter or regional affiliates of larger organizations
- International chapters of nonprofits based in another country
Eligible expenses
- Research network development and maintenance
- Patient and research community convenings
- Staff and general operations
- Research-enabling infrastructure such as biobanks and data collection efforts
Ineligible Costs and Activities
- Direct research funding
- Travel expenses to the United States for international grantees
Eligible geographic areas
- Any country
Processing and Agreement
- Applications are reviewed and may receive independent expert review.
- CZI makes the final funding decision and does not provide feedback on unfunded proposals.
- Selected applicants receive a decision notice, with earliest notification in early August 2024.
- A grant agreement is required for funded projects, and reporting is expected during the grant term.
Additional information
- Applications must be submitted through CZI’s SurveyMonkey Apply portal.
- The application must be completed by the Patient Organization Lead.
- Deadline extensions will not be granted.
- CZI may request budget changes before award.
Contacts
Frequently Asked Questions about the Rare As One (Cycle 3) Program
Here are answers to the most common questions about the Rare As One (Cycle 3). This section explains what the program is, how much funding is available, eligibility requirements, application deadlines, and other important details to help you determine if this grant is right for your business.
What is the Rare As One (Cycle 3)?
This program offers up to $800,000 over five years to patient-led rare disease organizations. It supports research networks, patient and research community convening, and shared research priorities.
How much funding can be received?
Rare As One (Cycle 3) Funds up to 15% of admissible expenses, capped at $800,000 per project.
What is the deadline to apply?
The application deadline for this grant program was February 22, 2024.
Who is eligible for the Rare As One (Cycle 3) program?
To be eligible for the Rare As One (Cycle 3) program, you must:
Patient-led rare disease organization
Nonprofit status or fiscal sponsor required
Annual budget under $5 million USD
What expenses are eligible under Rare As One (Cycle 3)?
Build or strengthen a patient-led rare disease research network
Convene the patient and research community
Develop shared research priorities and proposals
Strengthen organizational and scientific capacity within the disease area
Who can I contact for more information about the Rare As One (Cycle 3)?
You can contact Chan Zuckerberg Initiative (CZI) by email at sciencegrants@chanzuckerberg.com or by phone at none.
Where is the Rare As One (Cycle 3) available?
The Rare As One (Cycle 3) program is available across Canada.