Closed
Patient-Partnered Collaborations for Rare Neurodegenerative Disease RFA
Patient-partnered research on rare neurodegenerative disease
Last Update: April 21, 2026
Funding available
$ 2,000,000
Timeline
- Open Date : February 1, 2022
- Closing date : May 24, 2022
Location
Canada
Overview
This program provides up to $2,000,000 over four years for patient-partnered research on rare neurodegenerative disease. It supports discovery science projects on disease mechanisms, patient collaboration, data sharing, and open science.
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Opportunity Score
Moderate potential, but conditions must align.
At a glance
Funding available
Financing goals
- Develop strategic partnerships
- Increase social or community impact
- Conduct research and development activities
Eligible Funding
- Maximum amount : 2,000,000 $
Timeline
- Open Date : February 1, 2022
- Closing date : May 24, 2022
Eligible candidates
Eligible Industries
- Professional, scientific and technical services
- Health care and social assistance
Location
- Canada
Legal structures
- All legal structures
Annual revenue
- All revenue ranges
Organisation size
- All organization sizes
Audience
- All groups
Next Steps
1
Determine your project
2
Validate your eligibility
Activities funded
- Discovery science on rare neurodegenerative disease mechanisms
- Projects addressing causes, progression, and biological mechanisms
- Cross-disease and data-centered research on rare neurological disorders
- Longitudinal studies and model development tied to specific research questions
Documents Needed
- Institutional Approval Form
- Project proposal PDF
- Budget description PDF
- Biosketches or resumes for the Coordinating PI, Lead Patient Organization PI, and co-PIs
Official resources
Eligibility
Who is eligible?
- Nonprofit organizations
- Public and private research institutions
- Universities, colleges, hospitals, and laboratories
- State, local, and federal government research entities
Who is not eligible
- For-profit organizations as funding recipients
- Individuals applying on their own
- Meta employees and employees of Chan Zuckerberg Initiative, LLC
Eligible expenses
- Personnel costs
- Supplies and equipment
- Travel and meeting costs
- Subcontracts and other project costs
- Indirect costs up to the stated limit
Ineligible Costs and Activities
- Clinical trials
- Pre-clinical work mainly for clinical trial readiness
- Tool or resource development not tied to a specific research plan
- Travel expenses to the United States for international grantees
- Funding for for-profit organizations as recipients
Eligible geographic areas
- Research institutions based in any country
- Patient organizations based in the U.S. or outside the U.S.
Selection criteria
- Scientific merit
- Patient perspective and relevance to patient priorities
- Productivity and expected scientific output
- Tool and resource dissemination and open sharing
- Collaboration and inclusion of representative communities
How to apply
- Step 1
- Create and verify a SurveyMonkey Apply account for the Coordinating PI.
- Review the application instructions and RFA materials.
- Step 2
- Complete the required portal tasks and upload the required PDFs.
- Prepare project, budget, institution, patient organization, and biosketch information.
- Step 3
- Mark each task as complete in the portal.
- Review the full application before submitting.
- Step 4
- Submit the application through the CZI portal before the deadline.
- Check for the confirmation email after submission.
Processing and Agreement
- Applications are externally reviewed by experts in relevant fields.
- CZI staff make final decisions with scientific advisors.
- Funding is not guaranteed, and no set number of awards is promised.
- Applicants are notified of decisions by the stated timeline.
- Annual reports are required during the award period.
Additional information
- Only one application may be submitted per Coordinating PI and per patient organization.
- Applications must be submitted through CZI’s online grants portal.
- Annual reports and progress reporting are required during the award period.
- Successful projects must follow open science, data sharing, and publication policies.
Contacts
Frequently Asked Questions about the Patient-Partnered Collaborations for Rare Neurodegenerative Disease RFA Program
What is the Patient-Partnered Collaborations for Rare Neurodegenerative Disease RFA?
This program provides up to $2,000,000 over four years for patient-partnered research on rare neurodegenerative disease. It supports discovery science projects on disease mechanisms, patient collaboration, data sharing, and open science.
How much funding can be received?
Patient-Partnered Collaborations for Rare Neurodegenerative Disease RFA Funds up to $2,000,000 of admissible expenses.
What is the deadline to apply?
The application deadline for this grant program was May 24, 2022.
Who is eligible for the Patient-Partnered Collaborations for Rare Neurodegenerative Disease RFA program?
To be eligible for the Patient-Partnered Collaborations for Rare Neurodegenerative Disease RFA program, you must:
Collaborative patient-research team
Coordinating PI at research institution
Patient-led rare disease organization
What expenses are eligible under Patient-Partnered Collaborations for Rare Neurodegenerative Disease RFA?
Discovery science on rare neurodegenerative disease mechanisms
Projects addressing causes, progression, and biological mechanisms
Cross-disease and data-centered research on rare neurological disorders
Longitudinal studies and model development tied to specific research questions
Who can I contact for more information about the Patient-Partnered Collaborations for Rare Neurodegenerative Disease RFA?
You can contact Chan Zuckerberg Initiative (CZI) by email at sciencegrants@chanzuckerberg.com.
Where is the Patient-Partnered Collaborations for Rare Neurodegenerative Disease RFA available?
The Patient-Partnered Collaborations for Rare Neurodegenerative Disease RFA program is available across Canada.