Grant and Funding Programs Offered by Chromosome 18 Registry & Research Society (C18)

The Chromosome 18 Registry & Research Society operates as a patient advocacy organization that raises and directs funds toward chromosome 18 research. As a 501(c)(3) tax-exempt public charity, it functions as a discretionary funding provider, directing donated resources to support the Chromosome 18 Clinical Research Center at UT Health San Antonio—the only dedicated research institution worldwide for chromosome 18 conditions.

The organization funds projects focused on treatments, therapies, and interventions that improve lives of those with chromosome 18 abnormalities. With over 700 participants in a three-decades-long longitudinal study, the organization has facilitated significant medical breakthroughs and continues to drive toward its goal of making Chromosome 18 the first treatable chromosome condition.

As a registered non-profit, the organization provides detailed breakdowns of how donations are used, connecting specific gift amounts to concrete research outcomes (biobank storage, research enrollment, cell line establishment).