Grant and Funding Programs Offered by Fondation Le Tout Pour Loo
Overview of Available Grants and Funding
A Canadian foundation created in 2016 in memory of Louis (Loo), who passed away from Krabbe disease. It funds medical research on leucodystrophies, supports affected families, and partners with UQAM and McGill University for research projects. The foundation promotes the 'Protocol de Loo', a dietary approach developed by Loo's parents. View Fondation Le Tout Pour Loo's website for more information.
Content last updated: March 24, 2026
About Fondation Le Tout Pour Loo
What is the mission of Fondation Le Tout Pour Loo?
To support families affected by leucodystrophies, break the isolation they experience, and advance research to transform these fatal diseases into treatable conditions.
What type of organization is Fondation Le Tout Pour Loo?
Fondation Le Tout Pour Loo is a Foundation.
When was Fondation Le Tout Pour Loo founded?
Fondation Le Tout Pour Loo was founded in 2016.
What is Fondation Le Tout Pour Loo's official website?
Fondation Le Tout Pour Loo's official website is https://fondationletoutpourloo.org/.
What else should I know about Fondation Le Tout Pour Loo?
Role of the Foundation in the Funding Ecosystem
Fondation Le Tout Pour Loo is a patient-driven foundation that directly funds research into rare neurodegenerative diseases called leucodystrophies, particularly Krabbe disease. Founded in 2016 after the death of young Louis (Loo), the foundation bridges patient advocacy with scientific research by financing academic laboratories and supporting clinical initiatives.
Research Funding Areas
The foundation's primary funded research is conducted at the lipid metabolism laboratory of UQAM (Université du Québec à Montréal) under the direction of Dr. Catherine Mounier. This research focuses on demonstrating the mechanism of action of the 'Loo Protocol', a dietary intervention developed by Loo's parents that showed remarkable benefits for children with Krabbe disease. The foundation also collaborates with McGill University's Centre Universitaire de Santé McGill for clinical research on leucodystrophy patients.
Family Support and Advocacy
Beyond research funding, the foundation provides emotional support to families affected by leucodystrophies, helps break isolation, and raises public awareness about these rare diseases. The founder serves as a research assistant at the Montreal Children's Hospital, working with Dr. Geneviève Bernard's leucodystrophy research team.
International Partnerships
The foundation works with international partners including Lueur d'espoir pour Ayden (France) and other leucodystrophy foundations worldwide to advance research and support families across borders.